Rare Resilience: A Mental Health Podcast for the Rare Disease Community

health, fitness, mental, society, culture · EN

In rare disease, mental health often gets left behind as we prioritize the physical. But those unspoken challenges and unseen struggles can be the hardest parts to live with.Welcome to Rare Resilience, a mental health podcast for the rare disease community. Hosted by Dr. Al Freedman, this show explores the stories of people who have lived with and survived rare disease, and the challenges they overcame along the way.Dr. Al has spent over 30 years supporting individuals and families living with rare disease. Through his work, he hopes to honor his son Jack, who lived to the age of 26 with spinal muscular atrophy.